Live Stream: What Social Life?!

Recorded live stream from Dec. 16, 2018 in which we discuss in detail how difficult it is to manage social situations and expectations when you have fibromyalgia or another chronic pain condition.. This is a follow-up to our blog post we published the week before.

If you’d like to watch these types of videos live and/or participate in the discussion, we’d love to have you! First subscribe to Fibro Pulse on YouTube and like our facebook page. if you haven’t already. Then, tune in every Sunday starting at 1:00 pm EST/UTC-5. It’s as simple as that!

What Social Life | Fibro Pulse @fibropulse ( #fibromyalgia #fibro #chronicpain #chronicillness #spoonie #invisibleillness #chroniclife #spoonielife


  • I was diagnosed in 1990 (right after the syndrome was recognized as “real”) although the fibro began when “normal” late-pregnancy backache never went away in 1972.

    It’s been a long time, and I’ve learned a lot.

    Trigger point injections, nerve blocks and radio frequency ablation helped with the back pain, but it took spinal surgery to end it.

    Daily migraines were caused by the weight of my glasses. (They said my vision was 20/400, but I’m not sure I actually saw the “E” the eye chart.) LASEK fixed the problem. I’m 20/30 in both eyes and haven’t had a migraine in 22 years!

    And about that pain scale the doctors use. One Thanksgiving morning I woke up crying and was in such pain I couldn’t figure out why I was crying. I’d been fighting a sinus headache for a week when a migraine
    kicked in to boot. I was beyond the ability to think. THAT is level 10 pain. If you are still aware of the world around you, it’s only an 8 or 9!

    I guess what I’m saying is that, until those scientists who are madly working away in their labs find the cause (and ultimately a cure) for your own individual fibro, you will have to deal with each symptom as it occurs. Yes, do all you can to make your body healthy. Eat well. Exercise as your pain permits. Pace yourself. Find a healthcare provider who will work with you.

    Above all. Listen to your body. Take charge of it. Experiment until you find what works. Do not just sit there and moan and groan. I’m 75. I’m a farmwife . I raised two sons. I went back to college at 37. I earned 3 degrees in chemistry, biology, and education. I taught adults and helped them earn their high school diplomas. And I did it all while learning to deal with the many challenges of fibromyalgia. Fibro is not the end of your life. It just makes it more interesting.

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    • Yes, so true! It can be difficult but it is important to keep things in perspective.

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